This memoir covers an eventful month, followed by a difficult time period in the life of Susannah Cahalan, who, when this happened, was a healthy 24 year old young woman who worked as a reporter for the New York Post newspaper. 

             One day in 2009, she woke up and noticed two red dots on a vein which ran down her arm.  Susannah wasn’t normally a worrier, but she was concerned, thinking that the dots might be the result of bedbugs, but after a search of her apartment, she found no evidence of bedbugs, but nevertheless, she called an exterminator, but he too found no evidence of any bedbugs in her New York apartment.  However, Susannah couldn’t let go of the thought of bedbugs, and demanded that the exterminator fumigate her apartment.

        While still overly concerned by the thought of bedbugs, she experience a white-hot flash similar to what someone suffering from a migraine might have.   This was then followed by flu-like symptoms.  She began to think some sort of pathogen had invaded her body.  

            While her flu symptoms and headache came and went, Susannah noticed that she had begun being overly suspicious of her boyfriend, and even began snooping into his computer to read old emails from his previous girlfriend.   She realized that this was something she would have never done before.  Her headache returned and she began experiencing pins and needles in her arm, which lasted days.

    Susannah’s personality began to change.  She began to obsess about small things, and became paranoid of some people, thinking they were trying to harm her.  Knowing that something wasn’t right, she went to her doctor, who could find nothing, and suspected she was drinking too much, but had her take an MRI, which showed nothing except a small enlargement in a few lymph nodes in her neck.  This made the doctor suggest maybe she had Mono.  Finally having a diagnosis gave Susannah some relief.  

    While dining with her boyfriend before going to a concert.  Susannah became sickened with just the sight of the food she had ordered. At the concert she became dizzy and queasy   It felt like her legs could no longer support her weight.

    Her blood test came back saying she tested negative for Mona.  She began experiencing sleepless nights, and her work at the newspaper began to suffer.  Walking to work in the morning, colorful billboards began to hurt her eyes.  They seemed brighter than she had ever seen them.  She began to cry at everything, thinking her boyfriend didn’t love her, and she was bad at her job.  Her behavior became erratic,  She seemed to be having a some kind of breakdown.

    One night, Susannah’s grunts, low moans, and grinding teeth woke Stephen, her boyfriend.  When he turned over to see what was wrong, he found her sitting up, eyes wide opened, dilated, and unseeing.  Her arms shot out in front of him, and her eyes rolled back, as her body stiffened, and she began gasping for air.  Blood and foam spurted from her mouth through her clenched teeth.  She was having a seizure and the next thing she knew she woke up in the hospital.

    In the hospital more symptoms developed, her usual patience, kindness, and courteousness disappeared, she screamed to get out.  She became very paranoid, blaming people of ridiculous things.  She thought the people she saw on the TV screen were spying on her.  

           Her behavior become more bizarre and abnormal.  Doctors couldn’t figure out what was wrong with her.  Was she epileptic, a manic depressive, there was no solid evidence of what might be causing this abrupt change in Susannah’s personality.  She went from one doctor to another, until finally she was seen by a doctor who was exploring auto-immune infections in the brain.

    At one point, he ask her to draw a clock on a piece of paper.  When he saw that she put all of the clock’s numbers on just the right side of the clock she drew, he knew that the right side of her brain was inflamed.  A brain biopsy confirmed she had a rare form of encephalitis and he began to do the slow work that would hopefully bring Susannah back to the personality and life that she once had.

            It was a very long and difficult struggle for Susannah to get her personality back.  Her old friends were shocked at seeing how much she had changed by the encephalitis.   She could barely talk and certainly couldn’t concentrate on anything.   She had lost all of her confidence.   

            When she began researching for this book, she was horrified to see herself in the videos that had been taken of her, in the hospital.   It was like seeing a completely different person.   

           This book, and then a movie based on it, did much to publicize the auto-immune infection and make doctors recognize the symptoms of the extremely rare brain infection.    For me, the book reinforced how a person’s whole personality is dependent on the brain.  

You can view my paintings at:  davidmarchant2.ca